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| Marc Weinberg, Judy Weinberg, Senator Moore, Robert DeBoer, Representative Jennifer M. Callahan and Grace DeBoer. |
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June 29, 2006 – Senator Richard T. Moore (D-Uxbridge) recently welcomed Bob DeBoer of Sutton to the State House to present him with a Senate Resolution commemorating the observance of June 2006 as Myasthenia Graves Awareness month. Mr. Deboer is the chairman of the Massachusetts and New Hampshire Chapter of the Myasthenia Graves Foundation of America.
"I am pleased to be able to offer this special resolution commemorating Myasthenia Gravis Disease Awareness Month," said Moore. "Mr. DeBoer and the Massachusetts Chapter of the MG Foundation should be commended for their tireless efforts on behalf of those people affected by this rare, often misdiagnosed disease. By raising awareness of
it, I hope that we can join with the foundation in promoting a deeper understanding and better treatments of MG."
MG is a rare often misdiagnosed, autoimmune neuromuscular disease that causes weakness of the voluntary muscles which can be controlled by medication and other treatments, but can be fatal if left untreated. There are approximately 70,000 people in the United States today affected with the disease, but many go undiagnosed because of the rarity of the disease.
“MG is a very rare disease that only about 70,000 people in Massachusetts have,” said DeBoer. “Very few doctors are aware of it. After I began to show symptoms of the disease, I was fortunate to be sent to a neurologist that diagnosed me within four months. Most people are misdiagnosed for years. Today, through the Foundation and MG Awareness Month, the Foundation’s goal is to make 100% of doctors in the state aware of MG.”
The MG Foundation is the only national volunteer health agency dedicated solely to the fight against MG. The Massachusetts and New Hampshire Chapter is one of 34 chapters with a mission to provide help to the members of our Chapter by providing patient services, through discussion, lectures, personal experiences and to increase public and medical awareness of MG through press releases and proclamations.
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